Sjogren's....the gift that keeps on giving

My posts have been few and far between lately, and since God has blessed me with a meningitis-free summer so far, there has not been much health news to report.  But, with Sjogren's Syndrome being the wily autoimmune disease that it is, it would be too much to hope for a completely symptom free summer.  Sjogren's symptoms include dry mouth, dry skin, dry eyes, and at least in my case, reoccurring aseptic meningitis.  My worst symptom by far this summer is dry eyes.  My left eye is currently so dry that the vision is blurred due to erosion on my cornea.  See, I don't produce enough tears and tears are what removes the grit from underneath your eyelid.  If my body is unable to remove that grit with tears, it scratches my cornea giving me blurred vision and an uncomfortable sensitivity to light.  The ophthalmologist is not able to get me in until October so for now I'm continuing to use eye drops, ointment and warm compresses for comfort.

 Beyond the dry eyes, lately I've been suffering from insomnia (which goes hand in hand with my Fibromyalgia and which is why I am wide awake at 2 am on a Tuesday night) and some meningitis symptom flares, mainly headaches and nausea along with some dizziness.  At the end of last year my rheumy, Dr. H, decided that my next course of treatment would be Rituxan, a chemotherapy treatment used in some cases of lymphoma and rheumatoid arthritis.  Understandably, I was concerned about the idea of an IV chemo treatment (I was already on the pill form of Methotrexate) and I sought a second opinion from a rheumy in Ann Arbor.  My pesky little B cells are the reason Rituxan was recommended.  It is theorized that the B cells in my body are somehow egging on my immune system to continue to attack my body which results in the meningitis.  Rituxan is supposed to deplete my B cells and give me a period of less systemic issues.  The negative (well beyond the obvious whole chemo thing)?  It does not permanently deplete my B cells.

 Yes, it's true, they do make an E-Card for absolutely everything!

This informative article discusses the relapse rate (about 80%) for those who are treated with Rituxan.  My rheumy explained that my treatments would be once, two weeks apart, every six months.  We are now nearing the end of my first six month period and that is likely the reason I have been having so many symptom flares as of late.  After my first round of treatments, I started to feel hopeful and definitely caught a case of selective memory.  Now I recognize that this is likely my reality for a very long time, so I just need to get used to the ups and downs.  I can bear any ups and downs as long as I remember that God is with me and will be my strength in all things.

I can do all things through him who gives me strength.  

Philippians 4:13